Author Topic: Cancer, Living With  (Read 13845 times)

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Offline brilligtove

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Re: Cancer, Living With
« Reply #105 on: August 03, 2019, 01:27:44 am »
For the edification of the masses, I'd like to share some real talk between good friends who have been at death's door with cancer.

The other person is doing great, and is quite likely to live out an 70+year life. Less than a year ago that was prognosis was "prolly dead in three months" which was no fun for anyone. Their treatment was a lucky roll in many ways.

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ME: I suspect there's a very good chance I won't make 50 at this point. I'm not borrowing trouble or worry, but...

THEM: ...but you’re facing a second bout of cancer

ME is 2 months shy of 49.

ME: I mean, I hope that there's a single small mass in one place. But realistically? How TF do I get lung cancer?

THEM: Most likely metastasis from your last bout. Your odds depend on finding out what type it is and if there are others.

ME: If it is a metastasis I have serious doubts that it's in only one place. I'm not aiming for worst case, but I'm having trouble putting a high likelihood on other cases. I mean, there's certainly hope.

ME: I am not particularly hopeful at this moment.

THEM: Understandable. If it’s a single mass and they can remove is surgically you may have a decent chance. Lung treatments are apparently improving. But that’s the best case.

ME: Yup

THEM: This is one of those times when I feel like I’m supposed to say something positive and all I have is that this really sucks and it’s very easy for me to imagine how you feel right now

ME: I understand that you feel that way - but I'm not expecting you to toss me platitudes. I get quite the fuckton of those already.

THEM: Yeah that’s why I was avoiding them. Honestly one of the things you did for me that helped the most was that I didn’t have to pretend to be optimistic about my situation with you

Do something nice for someone. Make the world a little better.
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Offline brilligtove

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Re: Cancer, Living With
« Reply #106 on: August 04, 2019, 04:01:09 am »
Back in the hospital, emergency this time. My stoma kept bleeding today. After several hours and a drug or two I seem to be stable. Off to the ICU for monitoring next.

It turns out it's hard to find all the specialists in my conditions in the middle of the night on a Saturday of a long weekend.

I may not be very focussed on Mafia.
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Offline CarbShark

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Cancer, Living With
« Reply #107 on: August 04, 2019, 11:53:13 am »
Quote

Fuck cancer.

I appreciate the sentiment, but I'm pretty sure that would be *really* gross.

I was using one of the figurative fucks, not the literal fuck


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« Last Edit: August 06, 2019, 05:19:25 am by CarbShark »
... and Donald Trump is president of the United States

Offline Shakacon

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Re: Cancer, Living With
« Reply #108 on: August 04, 2019, 12:18:46 pm »
Oh, brilligtove, my thoughts and prayers will be with you.  I will ask my sister to put in a request for you in her special prayer basket as well.  She swears by it.  Please don't hesitate to let me know if there is anything I can do.

I will do my best to keep those scummy hounds looking for some townie targets off you in Mafia.  Don't worry about that.  Focus on getting better, but be sure to post at least once a game day so Captain Video leaves you alone.  I doubt if there are any items we can buy at night to stay the hand of the moderator.
Knowledge is Power!

Offline brilligtove

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Re: Cancer, Living With
« Reply #109 on: August 04, 2019, 12:30:07 pm »
I was using one of the figurative fucks, not the literal fuck
Hey, I didn't mean to kinkshame. You do you (or that undifferentiated glob of traitor cells).

;)

Oh, brilligtove, my thoughts and prayers will be with you.  I will ask my sister to put in a request for you in her special prayer basket as well.  She swears by it.  Please don't hesitate to let me know if there is anything I can do.

I will do my best to keep those scummy hounds looking for some townie targets off you in Mafia.  Don't worry about that.  Focus on getting better, but be sure to post at least once a game day so Captain Video leaves you alone.  I doubt if there are any items we can buy at night to stay the hand of the moderator.
Tanks o' berry mush.
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Offline Friendly Angel

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Re: Cancer, Living With
« Reply #110 on: August 04, 2019, 02:16:04 pm »
Non-platitudinous replies escape me.

I do learn what I think is a worthy lesson from how you're managing all this with dignity and integrity.

And I shall seek out opportunities for gratuitous good-doing.

Amend and resubmit.

Online John Albert

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Re: Cancer, Living With
« Reply #111 on: August 04, 2019, 03:05:20 pm »
Brill, I'm so sorry to hear this. My heart goes out to you.

Please, whatever you do, keep on fighting, take each day as it comes and never give up hope.

Offline lonely moa

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Re: Cancer, Living With
« Reply #112 on: August 05, 2019, 10:56:21 pm »
I feel for you.  Recurrence is every survivors nightmare; mine too, even after 15 years this month.
"Pull the goalie", Malcolm Gladwell.

Offline brilligtove

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Re: Cancer, Living With
« Reply #113 on: August 06, 2019, 12:44:26 pm »
I was exhausted from coughing up clot (15mL of so), and glanced at facebook while powering myself down. I saw this Kathy Barnett person posted a long rambling screed about naturopathy and TCM and don't believe your doctors and on and on.

My response:

Quote from There Are No Words group on Facebook
Quote
Kathy Barnett I am too tired right now to put up with bullshit like naturopathy or be polite about it. If it isn't evidence based IT IS NOT MEDICINE. I'd like to be treated using practices that conform to reality, thanks.

I'd be happy to hear about your journey. I won't be party to advocating for snake oil. Your post has been removed. You are welcome to try again.

Cranky man was cranky.
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Offline Morvis13

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Re: Cancer, Living With
« Reply #114 on: August 06, 2019, 01:04:16 pm »
If prayer actually worked there would be no such thing as cancer. Everybody on the planet knows someone that has had cancer.
That said if it made you feel better I'd lie to you as well.

Thanks for keeping us up to date and do let us know if there is anything we can do to help.
Murphy's Law: Anything that can go wrong will go wrong.
Morvis' Law: Anything that does go wrong is my fault.

Offline brilligtove

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Re: Cancer, Living With
« Reply #115 on: August 06, 2019, 02:56:39 pm »
In some ways hospitals are like the military: long periods of boredom and repetition punctuated by periods of Very Excitement.

Conversations here can be quite helpful in the quiet times.
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Offline Morvis13

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Re: Cancer, Living With
« Reply #116 on: August 06, 2019, 02:59:01 pm »
they letting you out of ICU soon? At least you are conscious and can have conversations.
Murphy's Law: Anything that can go wrong will go wrong.
Morvis' Law: Anything that does go wrong is my fault.

Offline brilligtove

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Re: Cancer, Living With
« Reply #117 on: August 06, 2019, 03:17:17 pm »
Timelines are not at all clear. I'm probably healthy enough to go home soon, but it's difficult to discharge someone out of an ICU. The big frustration at this moment is the wait for pathology to get to my biopsy. That can take 2 weeks. UGH.
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Offline Morvis13

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Re: Cancer, Living With
« Reply #118 on: August 06, 2019, 03:31:22 pm »
They won't keep you in ICU for 2 weeks. Not with Ford watching the bottom line. You can wait in a regular bed or at home if you are healthy enough.
Murphy's Law: Anything that can go wrong will go wrong.
Morvis' Law: Anything that does go wrong is my fault.

Offline brilligtove

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Re: Cancer, Living With
« Reply #119 on: August 06, 2019, 06:11:39 pm »
This unit is for patients with compromised airways for various reasons. I was here 4 years ago after my laryngectomy, actually. I don't expect to be here that long though. I am too healthy to be here given the low probability of a follow-up bleed. I'd rather be at home.
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