Author Topic: Cancer, Living With  (Read 14113 times)

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Offline brilligtove

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Re: Cancer, Living With
« Reply #90 on: July 30, 2019, 10:07:52 PM »
This goes here I guess.

It's almost certainly not cancer this time.

For six months breathing has been a struggle. It started with a viral infection in my airway - my first since the surgery - and got nastier with follow-up allergies. Serious asthma has been the result. That hasn't really explained the serious shortness-of-breath. After a lot of tests - ultrasounds, x-rays, and finally a CT scan - we've found that I likely have a really nasty infection of some sort. The word "necrotizing" was used - but it's not fast moving internal flesh digestion, at least.

On Friday morning I have a bronchioscopy to try to figure out what the hell is actually going on in my lungs. Assuming it's not cancer (which is unlikely) it could be viral, bacterial, or fungal infection - or perhaps something else.

So.

Months of treatments of limited effectiveness continue, but at least I'm likely to find out what is broken soon. Yesterday we were wondering if I'd be dead soon. Today we're wondering what sort of curative treatment could be possible.

Here's hoping.

Be well.
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Offline The Latinist

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Re: Cancer, Living With
« Reply #91 on: July 30, 2019, 10:32:13 PM »
Are you more susceptible to infection with a tracheostomy?
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Offline brilligtove

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Re: Cancer, Living With
« Reply #92 on: July 31, 2019, 12:11:41 AM »
Less, generally. A lot of critters want your nasal region to incubate in. Mine is generally not in play.
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Offline CarbShark

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Re: Cancer, Living With
« Reply #93 on: July 31, 2019, 12:26:00 AM »
Have they discussed Chronic obstructive pulmonary disease (COPD)?


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Offline lonely moa

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Re: Cancer, Living With
« Reply #94 on: July 31, 2019, 05:38:15 AM »
Sorry to hear this.  Good luck.
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Offline brilligtove

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Re: Cancer, Living With
« Reply #95 on: July 31, 2019, 08:40:13 AM »
Have they discussed Chronic obstructive pulmonary disease (COPD)?


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Not yet. This has characteristics that are chronic and acute. The asthma may clear when we deal with whatever they find on Friday.
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Offline brilligtove

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Re: Cancer, Living With
« Reply #96 on: August 02, 2019, 01:16:04 PM »
Bad news. It looks like cancer in my left lung.

I'll be updating those with an interest in a group called "There Are No Words" on Facebook. I'll cross-post here too, but may not be so diligent.

Since the spring I have had a cough that gradually got worse, with the addition of shortness of breath in the last few months. I didn't let it slide - my doctors have been trying stuff to deal with all this, and some of it has made some improvement. Not enough, though.

I had a CT scan a few weeks ago. It revealed a 'void' in my left lung that we hoped was some kind of infection. The bronchoscopy this morning found a mass of abnormal tissue there, blocking off that part of my lung.

There will be more tests in the weeks ahead to confirm and clarify, but that's where we are now. We don't know if the mass in my left lung is related to the cancer from 4 years ago or not, or even if it is the only mass one. Thus the testing that is being scheduled now. I'm expecting a PET scan, and depending on what they can diagnose from today's test there may be another bronchoscopy to get another sample. Maybe another CT of my head... Appointments are being made.

We're all overwhelmed, of course. I was kinda hoping to be celebrating 4 years cancer free around now. In 2015 on Aug 2 I was in the ICU still, I think, with an emergency trache tube and some scary days ahead.

I'll let you all know what's going on as I know it.
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Online Calinthalus

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Re: Cancer, Living With
« Reply #97 on: August 02, 2019, 01:29:35 PM »
Shit dude.  I always wonder who fears a diagnosis like this worse, those who have beaten it once, or those that have never had to.  I don't think I really ever put any thought into having cancer until I had it.  Now every few months something will make me think of how I'll feel the next time it comes around.


Either way, good luck.  I wish I could offer comfort, but I don't really know how.
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Offline DonA

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Re: Cancer, Living With
« Reply #98 on: August 02, 2019, 02:09:08 PM »
I just saw you post on Facebook.  Devastating. 

If you ever need anything from a fellow GTA'er let me know.

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Offline brilligtove

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Re: Cancer, Living With
« Reply #99 on: August 02, 2019, 02:11:02 PM »
Shit dude.  I always wonder who fears a diagnosis like this worse, those who have beaten it once, or those that have never had to.  I don't think I really ever put any thought into having cancer until I had it.  Now every few months something will make me think of how I'll feel the next time it comes around.


Either way, good luck.  I wish I could offer comfort, but I don't really know how.
I suspect those of us who have had it are mostly in the situation you describe. Right now I'm in the phase where we are past "bad news" but can still hope for "treatable".

I just saw you post on Facebook.  Devastating. 

If you ever need anything from a fellow GTA'er let me know.

Thanks, DonA. Can you get us a new Premiere? This one sucks.
« Last Edit: August 02, 2019, 02:13:14 PM by brilligtove »
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Offline PANTS!

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Re: Cancer, Living With
« Reply #100 on: August 02, 2019, 02:59:06 PM »
Fuck this.  I am so sorry.  Please let us know what we can do.
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Offline Harry Black

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Re: Cancer, Living With
« Reply #101 on: August 02, 2019, 06:53:26 PM »
I've been selfishly avoiding this thread because I didnt want to read what I just read.
Im sorry you have to go through this buddy.

Offline CarbShark

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Re: Cancer, Living With
« Reply #102 on: August 02, 2019, 09:33:25 PM »
Fuck cancer.


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Offline brilligtove

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Re: Cancer, Living With
« Reply #103 on: August 02, 2019, 09:58:45 PM »
Fuck this.  I am so sorry.  Please let us know what we can do.

Same as last time, I'd say. Go do something nice for someone because it's nice and they're someone. Stories of little good deeds bring an amazing amount of emotional support.

I've been selfishly avoiding this thread because I didnt want to read what I just read.
Im sorry you have to go through this buddy.

That isn't selfish. Sympathy appreciated.

Fuck cancer.

I appreciate the sentiment, but I'm pretty sure that would be *really* gross.
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Offline The Latinist

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Re: Cancer, Living With
« Reply #104 on: August 03, 2019, 12:51:46 AM »
Fuck, man. That sucks.
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