Author Topic: Cancer, Living With  (Read 11254 times)

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Offline Calinthalus

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Re: Cancer, Living With
« Reply #135 on: August 24, 2019, 07:55:25 AM »
Between the CT, MRI, and PET scans...I became really upset that I didn't develop superpowers.  Stan Lee promised.
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Online Noisy Rhysling

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Re: Cancer, Living With
« Reply #136 on: August 24, 2019, 09:47:32 AM »
Had cryoablation to remove my prostate last Oct. Pain diminished over the next three months. My PSA is now undetectable.

I don't recommend that process.
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Offline brilligtove

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Re: Cancer, Living With
« Reply #137 on: August 24, 2019, 07:10:43 PM »
Freezing out your prostate does not sound like a good time. Yeesh.
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Offline lonely moa

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Re: Cancer, Living With
« Reply #138 on: August 25, 2019, 05:34:25 AM »
We had  head and neck cancer week.  Weirdly interesting to a survivor of same. 

Go Gardasil.  It's free to young men and women (in NZ) and a pox on mothers that don't vaccine their offspring.
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Online Noisy Rhysling

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Re: Cancer, Living With
« Reply #139 on: August 25, 2019, 09:46:01 AM »
Freezing out your prostate does not sound like a good time. Yeesh.
It was billed as "minimally invasive". Yeah, proximity to an explosion was minimally invasive too, but it took six months to recover from that.  ::)
"Sunday's horoscope is note worthy because of its strange, sudden and wholly unpredictable and inexplicable occurrences, affecting all phases of life." Your Horoscope" L.A. Evening Herald Express, Sat, 12/06/41

Offline brilligtove

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Re: Cancer, Living With
« Reply #140 on: August 27, 2019, 01:14:59 PM »
CT Guided Biopsy Results: Cancer
My GP called yesterday. The latest CT guided lung biopsy shows cancer in my left lung. Samples were taken from the wall of the big hole only (it is too dangerous to biopsy the hilum using this technique). The hilar mass and the void are almost certainly the same cancer, however. The tests so far do not indicate if the current cancer is a descendent of the laryngeal cancer or a new primary site. I don’t know if, how, or when that might be determined.

This diagnosis is not a surprise: it was the most likely scenario. Aside from my usual shortness of breath and tiredness I am sad. “Not a surprise” is not at all the same as “good news.” At least we know more.

Treatment Options
I have no idea what my treatment options are yet. I have not spoken to any of my specialist doctors yet, and may not hear from them until the end of the week.

In general, treatment for cancer comes in four forms: cut, burn, poison, and hunt.
  • Cut – Surgery: I have no idea if any or all of the cancer can be cut out. Thoracic surgeons will have to consider the options. The hilum is a complicated area to work on and the tumour may not be cut-away-able. The stuff in my lung may be easier to get to, but I don’t have any sense of whether that is a good idea.
  • Burn – Radiotherapy: The new cancer is pretty high up in my chest. That’s quite near the region where I got most of my radiation dose four years ago. The tissue may not be able to take more. Radiation Oncologists will be in to talk about that.
  • Poison – Chemotherapy: I suspect that I’ll be taking some form of chemotherapy, but will have to talk to the chemotherapy doctors about what makes sense.
  • Hunt – Immunotherapy: Most immunotherapy is still experimental. When it works it’s amazing: teaching your immune system to sniff out the cancer is astonishingly powerful. Unfortunately, cancer evades the immune system by smelling exactly like the rest of you does. When immunotherapy goes wrong your immune system kills you quite efficiently – thus the ‘experimental’ part. It tends to be high risk.
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Online Noisy Rhysling

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Re: Cancer, Living With
« Reply #141 on: August 27, 2019, 06:50:33 PM »
Good luck to you.
"Sunday's horoscope is note worthy because of its strange, sudden and wholly unpredictable and inexplicable occurrences, affecting all phases of life." Your Horoscope" L.A. Evening Herald Express, Sat, 12/06/41

Offline Friendly Angel

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Re: Cancer, Living With
« Reply #142 on: September 12, 2019, 12:53:36 PM »
My neighbor has an inoperable abdominal tumor... he's probably terminal, he's depressed.

Neighbor got the prognosis yesterday, he has a year at most.  Old friends and colleagues are coming by his house to commiserate - it's literally morbid.  His wife will be a widow at age 62.

Emotions are dumb. I understand the guilt-because-health thing happens and you can't just make it stop. Unless you've been poisoning people it's pretty hard to find the part where you are responsible though. It can help to focus on gratitude for health instead (thankful to luck in a skeptic's case).

I'm glad your health is good!

I've been thinking about this more.  I don't think the guilt is about feeling good, I think the guilt is about thinking I'm happy that it's not me that has to deal with that crap... and feeling happy about feeling good.  Anyway, it's not a repressive kind of guilt, it's just enough to restrain me from shouting "I FEEL GREAT" all the time.
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Offline brilligtove

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Re: Cancer, Living With
« Reply #143 on: September 12, 2019, 08:54:54 PM »
My neighbor has an inoperable abdominal tumor... he's probably terminal, he's depressed.

Neighbor got the prognosis yesterday, he has a year at most.  Old friends and colleagues are coming by his house to commiserate - it's literally morbid.  His wife will be a widow at age 62.

Emotions are dumb. I understand the guilt-because-health thing happens and you can't just make it stop. Unless you've been poisoning people it's pretty hard to find the part where you are responsible though. It can help to focus on gratitude for health instead (thankful to luck in a skeptic's case).

I'm glad your health is good!

I've been thinking about this more.  I don't think the guilt is about feeling good, I think the guilt is about thinking I'm happy that it's not me that has to deal with that crap... and feeling happy about feeling good.  Anyway, it's not a repressive kind of guilt, it's just enough to restrain me from shouting "I FEEL GREAT" all the time.

Shouting "I feel great" all the time would be a bit much. :) Some people who don't feel great will interpret that as "I am better than you" whether you feel that way or not. I happen to not be one of the people who would put that on you: I'm happy you are healthy and feel good. That takes nothing from me, and - presuming you're not an evil fiend - likely makes the world a better place.
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Offline brilligtove

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Re: Cancer, Living With
« Reply #144 on: September 12, 2019, 08:58:00 PM »
My wife and I had a good visit at the Odette Centre. Dr Louie (Radiation Oncologist) was helpful and is moving things along. He got us down in the scanning department to get the targetting scans done. No mask to wear this time, but I have 3 new tiny blue tattoos. Practically a constellation. Dr. Louie has also set up my meeting with a medical oncologist (chemo) for the 18th. That won't delay anything, as treatment is due to start on September 30th. It takes a few weeks to do the math on the radiation paths, especially given my previous doses in nearby areas. This time will look a lot like treatment last time: about 30 doses of radiation five days a week for six weeks.

I don't know what the chemo will look like yet, but it will be happening at the same time as the radiation. It enhances the effectiveness of the radiation.

If immunotherapy is possible, it will be done some time after the rad/chem. There is a reasonable chance that immunotherapy will be possible, but we won't know until well into (or even after) the burning and poisoning are complete.

At this point they're talking in terms of 'curative treatment', which is nice.
evidence trumps experience | performance over perfection | responsibility – authority = scapegoat | emotions motivate; data doesn't

Online Noisy Rhysling

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Re: Cancer, Living With
« Reply #145 on: September 13, 2019, 05:18:17 AM »
It's nice to be "in maintenance mode". I'm in "we'll check you every six months now". G'luck to ya, mate.
"Sunday's horoscope is note worthy because of its strange, sudden and wholly unpredictable and inexplicable occurrences, affecting all phases of life." Your Horoscope" L.A. Evening Herald Express, Sat, 12/06/41

Offline Calinthalus

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Re: Cancer, Living With
« Reply #146 on: September 13, 2019, 08:12:44 AM »
Yeah, I'm going to my oncologist Monday morning for another game of "Don't Be Shy, I'm just squeezing your remaining ball while having a conversation".


Glad to hear they are using the 'curative treatment' model brillingtove.  You always dread the word "palliative".
"I think computer viruses should count as life. Maybe it says something about human nature, that the only form of life we have created so far is purely destructive. Talk about creating life in our own image."
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Offline brilligtove

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Re: Cancer, Living With
« Reply #147 on: October 04, 2019, 05:25:17 PM »
Yeah, I'm going to my oncologist Monday morning for another game of "Don't Be Shy, I'm just squeezing your remaining ball while having a conversation".


Glad to hear they are using the 'curative treatment' model brillingtove.  You always dread the word "palliative".

I hope your fondling had positive outcomes.

Week One: Done.
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Online Noisy Rhysling

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Re: Cancer, Living With
« Reply #148 on: October 04, 2019, 05:52:43 PM »
Lab results, PSA "Undetectable".

I'll try to do better next time.
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Online The Latinist

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Re: Cancer, Living With
« Reply #149 on: October 05, 2019, 02:22:27 PM »
My doctor wants to do a PSA at my next routine blood work.  I tried to tell him that I'm probably not going to do anything regardless of the results, but he wasn't really listening.  I'm 42 years old, there's no history of prostate cancer in my family, and risks of false positive seem to me still to outweigh the likelihood of catching a curable, life-threatening prostate cancer. Sigh.
I would like to propose...that...it is undesirable to believe in a proposition when there is no ground whatever for supposing it true. — Bertrand Russell

 

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